Website:
http://pulseoxadvocacy.com/: great sample letters to send to your State Represenatives to work to get a bill passed.
http://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/index.html: includes the description of the recommendation for what should be done, i.e. passing the pulse ox bill in ALL states.
http://1in100.org/: Advocacy information, CHD information, general CHD facts
http://mendedlittlehearts.org/mlh-eduresources.shtml: educational resource including links to other sites that are working towards getting a bill passed, including Childrens Heart Foundation, American Heart Association, etc.
